Nora was born with an abdominal wall birth defect called gastroschisis, suffers from GERD, but is so happy I swear she poops rainbows and kittens some days. Her Daddy, however, would disagree at the contents of her diaper...
This is Nora When she was born, it was scary as hell for everyone involved. Having a child born with a birth defect is an experience I do not wish upon even my worst enemy. Regardless, I feel like Nora has taught me how to have strength, patience, and most of all: courage. She has given me perspective that most people do not acquire in their lifetime.
When Nora has a good day, she is perfect. When Nora has a bad day, she is perfect. Even with the forceful vomits, the painful cries, the MANY doctor visits, the medications, and the financial impact of having a child with special medical needs. I wouldn't change a thing, simply because this is who Nora is.
This is me, 'Momma' (My real name is Tiffany, just so you know...)I am a mother, a wife, and the Parent Support Coordinator for Avery's Angels® Gastroschisis Foundation. I am also a tattoo lover, a cosmetologist, and part time "nurse" for Nora. I had a conversation with a dear friend before Nora was born that ultimately made me realize I am not a momma bear... I am a momma lion. I am protective as hell, and fierce to the end. I will fight dirty if anyone so much as looks at my cub the wrong way, claws out, teeth bared, and willing to do what it takes to make sure my daughter is taken care of.
This is 'Daddy' (aka James)While I may be the juggler of the family, making sure appointments are made (and attended!), bills are paid, and the laundry is done, James is the rock. He is our provider, and works his rear end off to make sure that we are taken care of. His job of being a daddy and a providing husband is just as stressful as mine, and while we have days that we forget our manners with one another, he is always appreciated and most important of all, loved.
This is our family. We struggle, we get mad. Some days we may easily forget what matters most. But no matter what we love one another with everything we have. We laugh, we goof around, we love. We remember what truly matters most when we see our daughter continuing to grow and thrive.
We love our little family.
Tiff, I am so proud of you! You are an amazing mother, wife and supporter! What you are doing here with this blog is amazing and something that Nora will grow to love being able to look back on. What you are doing for your family and for Avery's Angels as well as new mommy's who may have a child born with gastroschisis is a great gift, one that is one of the greatest gifts you could give! Again, so very proud of you! Love you!!
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